Wednesday, February 4, 2015

Boring Post Alert


UGH! The frustrations boil!! Let me back track a bit. My doctor...three weeks ago, gave me a med that was suppose to help me while we wait on labs. Well... it was a Friday and their lab was closed so we had to wait until Monday. Then FINALLY labs come back a few days later and they have a few high abnormal readings but nothing shocking. Next up..CT scan. They call me on a Thursday saying to stop taking my med (since it wasn't helping) and they would schedule a CT scan. On Friday last week I finally heard back that my CT scan would be on Wednesday (today) ...my first reaction was why so long?? I've gone directly to CT from the dr office before so why is this any different? She was rude and something about referral etc..whatever...I waited...and waited...So today gets here and I have an 815 appointment. I decided no food or drink probably which I'm glad I did. They looked over my file and asked about allergies ( I have been here for a sono before so they have history) and the paper I filled out said I am ALLERGIC to contrast dye...so I hand her back the papers. Obivously...she knows I'm there for a contrast CT and the paper I just handed her in BOLD says allergy to contrast dye...HMM!! She hands me this drink. Here is barium...drink it and they should be with your shortly. Barium? They didn't tell me this. I asked her if it had any side effects etc...she said don't know...I'm just the receptionist.  So I sip on it a bit (disgusting) and they call me to the back. As I'm talking to the radiologist she's reading my paper and looks at me and says STOP! HUH? She asked why they gave me the barium drink when my paperwork has all over it allergic to contrast AND why would my dr send me without premedicating me before scan. ARGG!! She called my specialist and for some reason they didn't know of my allergy so here I am.... in a waiting game....but they won't allow me to do the test outside of the hospital at this point. The side effect of the barium was disgusting to say the least....and my dr never called back today to get another CT scan rescheduled...:( Besides that exciting stuff the  kids are well! Abigail is growing so fast and saying so much. Caleb is busy with school and relaxing before baseball begins. Nick started back on the flight line this week and loves it :P(sarcasm)Sorry for the complaining....but I'm going to one day look at this blog and remember this dark time and see how far I've come...I'm so ready to be better <3  

Tuesday, January 20, 2015

Hoping to help

I feel the need to write this blog...not only to vent but also because I want people to understand why and possibly help someone who is also in the same boat as me. I often wonder...why...when and how?   

I suffer from IBS/IBD symptoms or as my GI doctor has said...early signs of Crohn's. It is not a walk in the park. My first memory of having tummy trouble took me back to 8th grade.. It has changed my everyday life. I have suffered from IBS for several years now..ignoring my symptoms..which leads to current day. My symptoms have only continued to get worse as time goes on. I have had numerous tests and scans which lead back to the same places. There are days I wake up and say to myself that it's a new day and things will be okay. Some days are...most days are not. I feel like I'm missing out on my kids growing up being in this condition constantly. This past week alone I've lost 6 pounds...afraid to even eat sometimes. I have slowly hid my symptoms and sometimes feel like a prisoner in my own home.  Last week I started a new 'clean' eating diet and added in some fish oil and Kefir. Today was a bad day..the bleeding and bathroom trips continued ....I made it through half of the day without any problems until I ate chicken for lunch..plain ol chicken..one day I will be able to help this ...until then...

I will eventually update this blog as I work with my GI doctor next month on a plan to help me with this. I don't really even know what to call what I have going on right now any certain condition but I want the normal days back...I want my family, friends and clients to understand....it's hard...my symptoms are out of my control right now. Unknowing people say...slacker...2 hour lunches (I do this so I know how my food will digest)...why are you sick all the time, you look fine...on the outside I am...on the inside..I am not ..:(  I'm using this blog to navigate me and help me keep track of where I've been and where I'm going. Feel free to follow...I promise the rest won't be so bad :D